I HATE that phrase…

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Can I just get all of the boys doctors all in one room and everyone can tell me how to raise and feed my kids all at one time?
Being told over and over and over from different people who don’t actually KNOW my kids is getting EXTREMELY overwhelming… and annoying.

*sigh*
So, I blew up on one of the doctors at the Pediatrician’s office we go to today. They have many Doctors/Nurse Practitioners there… and he wasn’t the one we normally see, but was the one whom they set us up with to do his Health and Physical to be cleared for his Sedation Hearing test in two days.

I didn’t mean to.
I didn’t want to.
I tried to hold it in as much as I possibly could… but as soon as he said that phrase… I just couldn’t hold it in any more.

So he walks in.
Says hi… starts typing.
“And what are we seeing you guys for today?”

I explained.
He finished typing, grabbed some gloves and walked over to Jax.
He starts listening to his chest and the first thing he says… before asking me questions about how he eats or how often… he asks if he has been tested for >>whatever<<… I said no, I don’t know what that is.

“It’s >blah blah blah< when they can’t stop eating. They just eat and eat and eat.”

I was like… seriously?!
“He doesn’t eat a lot… or every often”
“Huh”
*keeps examining*
He asks me very vague questions about his eating… I explain he really only snacks.. Mostly crunchy carbs… cereal and veggie straws.

And again… without asking me why… without asking me what I’ve tried… without asking me if he has any actual issues with anything… he starts telling me about this little girl…

Who was “quite big” and only two.
And I’m just staring at him… NOT smiling… because I was pissed.
This was NOT why I was here… and I JUST got to listen to all this crap two weeks ago at his Eval.

He’s going on and on about eating… and all I can think was, Jax has been barely holding it together by this point. He just wants to leave…
Then he started explaining how you start with meat, and once they eat that THEN they get fruit… then they get juice or a cereal…. And you do that all day… and that little girl didn’t eat the whole day… (In my head I’m telling myself… stay calm… stay calm…. Don’t freak out. You’re almost out of here… just keep nodding).

Then he smiled at me… like he was trying to reassure me… and said “They’ll eat when they’re hungry. Don’t worry. He won’t starve!”

That phrase… THAT FREAKING PHRASE!!!!!!!!!!!!!!!!!!!!!!!
Sure… some kids WILL eat if you hold out… they’ve been shown from an early age that they don’t “have” to eat what they don’t want to.

But for kids like mine… who will literally starve before eating something that they just can’t stand… it’s not going to happen. It doesn’t mean I don’t try and offer new foods… but forcing them… doing the whole “you’ll eat when you’re hungry” makes it worse… and makes them have an even worse attitude towards food. And it’s down right dangerous to offer that advice when you don’t know the kid. AT. FREAKING. ALL!!!

I couldn’t… I lasted as long as I could, and I blew up… I cried…

“I’ve tried that! I’ve got three Autistic kids with food aversions and sensory issues and I’ve tried that! It doesn’t work. What I’ve been doing has been working… when I tried that… it made it worse! I’m tired of getting crapped on about his weight every time I go to a doctor’s appointment!!”

Totally shocked… he back peddles “I’m not being harsh… I’m just trying to ask questions and find out… I don’t know anything about you guys… I’m just telling you what’s worked… trying to help.”

I wanted to yell: But you’re NOT asking… you’re TELLING!!!!

“I can’t feed him anything different until I know what’s wrong with him. He’s had issues since birth!! I’m trying my best!”

I explained more… Explained the tests we’ve done. Explained how I think he might have Celiac… that he gets severe diarrhea… that he screams when I give him different foods.

He stopped talking… finished the eval…
Jax and I both calmed down.

Then he starts telling me to not worry… that kids like this get better.
That kids on the spectrum just need positive parenting… and goes on about how to parent a child like him.

I internally rolled my eyes so hard.
FREAKING KIDDING ME!?!?! Is this the visit from hell????
NOW… NOW we’re not only telling me how to feed my child… you’re telling me how to raise him… without asking me how I do it…
UGHHHH

“I’ve got two other, older Autistic kids… I know what I’m doing.”
“You have two other Autistic kids? That’s uncommon.”

(soooooooooo you weren’t actually listening to me when I was upset… when I said I had three Autistic kids… do you think I was just kidding?!)

He finally left…
And I bawled my eyes out…
It’s been an hour and I’m still freaking crying over this crap.

I obsess…
I worry…
I stress…
I FREAK THE CRAP OUT about making sure I’m being the best possible parent for my kids… in all aspects. Teaching them, loving them, caring for them, disciplining them, feeding them, therapy, exercise….

And some guy… who hasn’t seen my son in 2 ½ years (he saw him at 2 weeks old), and for maybe 5 minutes, is giving me parenting advice.

I criticize myself enough on my own… I don’t need anyone else to do it for me.

Everyone is telling me what I need to do.
School tells me to work on this… therapists tell me to work on the areas they’re focused on… doctors tell me to focus on feeding and exercise…

What you all want me to do… and expect of me… is all “advice”…
I’m the parent!!!
I get to FREAKING choose for my children what is most important right now.
Plus…
I’ve got THREE Autistic kids who all have therapists and doctors telling me what they all need me to be focusing on…
There’s only one me… and I’m doing the best I can.

Especially considering I’ve got my own mental and physical health I’m trying to deal with.

*sigh*

I just needed to vent this out or I’d end up crying about it all day.
I planned on coming back to our page soon… but with all these doctors apts where I’m being beaten down… I don’t know when I’ll ever be mentally ready to come back… These migraines are killing me.

Anyway…  
I Love and appreciate you guys. ❤

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Self Diagnosing

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I’m Autistic, probably have ADD/ADHD, Sensory Issues and Food Aversions.
I plan on getting my “real diagnosis” once I have insurance again.

I’ve thought I’ve had these for a while now (some longer than others), but I’ve always been afraid to come out and say it. People can be incredibly mean and judgmental… I also keep second guessing myself (maybe you’re just crazy?), and there’s a bit of denial too.

For as long as I can remember, I had food aversions. Like sitting at the dinner table for HOURS because I couldn’t make myself eat the spaghetti my Mom made because it had onions in it (I still can’t eat onions). I can’t eat chicken off a bone (after it’s been cut off and I’ve dissected it, I can eat it, but like chicken wings – nope, isn’t going to happen…). I LOVE the taste of fruit/fruit juice, but most of their textures, I can’t stand. Like Bananas, oranges, soft grapes, pears, plums…. pretty much anything but watermelon and apples… and even then, I’m picky about those too. Eventually I did figure out that it was the texture of foods that I didn’t like… but there were some foods I just don’t like the taste of either.

Then when I met my husband, he gave me a name/phrase for the things I didn’t like that weren’t over texture… I also have “little kid taste buds”. 😉 I don’t like wine, beer or coffee… you know, adult things. lol

But I also have just texture issues that have nothing to do with food. Like if I get something sticky gets on my hands I need to wash them immediately. I can’t use lotion, going to the beach sucks for me. It’s not so bad while I’m there, but if I can’t rinse off and change before I leave, the feeling of the gritty sand and the sticky salt water on me drives me crazy. I don’t like wearing pants in general unless they’re lightweight PJ pants. lol Or socks with the stitching in the toe, but I don’t mind wearing toe socks!! lol

I’m Autistic. I just always thought I was weird… “quirky”. I never really fit in with any particular group of kids. I’d find one or two people I liked and hung out with them. I used to think the reason I didn’t have many friends was due to moving around so much. I went to a different school every year starting in 8th grade (I moved in with my Aunt and Uncle and they are in the Air Force). I have a hard time keeping relationships. It’s not that I don’t want them! If anything, I get depressed over not having friends, but when I go looking for them… I have a hard time finding others like me.  I try to make friends anyway, and try to find common ground, but eventually it gets too hard for me to keep up the friendship and I end up sabotaging it. Then once I do, it’s exhausting and mentally and physically hard to keep up with. I stop talking to them, then I feel bad for not talking to them for so long, so I continue to NOT talk to them. Even when I find people who ARE like me, I’m so drained from personal issues (like migraines, TMJ, Lower back pain, fibromyalgia…) and taking care of my three kids who are also Autistic, that by the end of the day when I CAN talk to them, I don’t want to. Well… I “want” to, but end up zoning out watching a movie.

Movies/TV/Books are really the only way I can zone out and just not think for a while. Because I probably have ADD/ADHD, I have a really hard time NOT thinking about something. I’m usually thinking about quite a few things at a time, and when it’s really bad I can’t focus on anything, let alone the MANY things going through my brain. Which is also why it’s really hard for me to write. I actually write better than I talk… I have a hard time staying on subject when I’m speaking… I go off on tangents then forget what I’m talking about. But when I’m writing, I’m able to go back and reread what I wrote, so I can continue talking about what I need to. Or go back and delete a bunch of text that I thought was important, but really wasn’t (can’t do that in person). I often get SO distracted by everything else going on around me, I can’t focus long enough to write something. Which is also the reason I have a hard time finishing anything. My Aunt called it her “but first syndrome”.

I should do the dishes, but first, let me pick up these toys… but first I should pick up the food the boys dropped, but first, I need to get a trash bag… goes to the kitchen, but first I should make the kids their drinks, but first I need to go to the bathroom, I didn’t realize how bad I had to go, but first, look at all these dishes, I need to do these first. lol So, I DO end up getting things done, but probably not as much as I would if I could focus on just one thing at a time.

Having all of these has been hard. Especially because I didn’t understand why I was the way I was or why I did the things I did, until recently. I would look back at my life and not understand. Why did I have such a hard time making and keeping friends? Why did I make such bad decisions sooo often? Why did I have such bad relationships with my family, friends, significant others? Why am I so emotional or really easy to anger? Why can’t I get good grades in school? Why am I SUCH a picky eater?!?!

There are so many aspects to my life that took me a lot longer to realize and work on… even before I realized I probably have ADD/ADHD and Autistic. That if I had known why I did the things I did when I was younger, I might have had a completely different life. Better relationships… Finished college…

Maybe my depression wouldn’t have gotten so bad and wouldn’t have tried hurting myself so often. 

Although it does make me sad sometimes, there’s nothing I can do about it now.

Now I’m focusing on learning as much as I can so I can continue to better understand myself and really my kids. Although they don’t have the SAME problems/restrictions/“quirks” I do, I’m understanding why THEY are the way they are… or why they do the things they do, because I better understand myself.

These are just a FEW of the problems I have and have faced… to give you an idea of how important it is to talk about family history and to learn and understand. Even IF my family had figured out I was different than other girls my age and had me tested, I probably wouldn’t have gotten a diagnosis. Even today women are still not getting the diagnosis they need. All because we don’t show the same “signs and symptoms” as our male counterparts exhibit or because we are better at learning to mimic “normal” behaviors.

That and on my mom’s side, “you need to go to therapy” was an insult they used often, not a helpful idea. We didn’t talk about mental health or genetic “problems” or differences. So, even if someone in my family knew someone might have had a genetic difference, no one would talk about it and we would deny it until the day we died.

  • I’m trying to break generational curses and trying to better my family. 🙂 And although officially I don’t have a diagnosis… I’m not going to be afraid or ashamed to say it. I’m Autistic, ADD/ADHD, Sensory Issues and Food Aversions… depression , anxiety, and a slew of others… but just because my Autism doesn’t look like yours, doesn’t mean I’m not. Just because I can make eye contact, have a conversation, go (back) to college, get married and have kids… doesn’t mean I’m not.


Just because I’m a woman… doesn’t mean I can’t be Autistic.