Soap Box

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Here is a response to a meme I made that says “You might be an Autism Parent if…” and what I wrote back.

“Yeah I don’t like anything that uses the phrase “autism parent”. Tends to be anti autism rhetoric in the form of worshiping those who have autistic kids.

Which is dangerous because it doesn’t make a parent more dedicated or understanding or patient or whatever else. We (young autistic people) are at increased risk for abuse and even being killed by our parents who are put on pedi stools just because they have kids who aren’t NT.

So yeah.

I’m Autistic and have two Autistic kids and a baby…

I’m not putting myself on a pedestal … I’m helping others in similar situations be able to relate.
I’m also allowing others who don’t have kids on the spectrum to see and possibly understand what it’s like to have kids on the spectrum or what it’s like for the kids on the spectrum.
I also don’t like to wear pants. lol
But if we don’t speak up and show people what it’s like, even just the silly things like not wearing pants… people don’t get it and don’t understand. They shame us. They look at us in disgust because we can’t “control our kids”. The way I see it, every post, every picture, every meme I make that gets passed around, that has anything to do with Autism… helps make our lives better.
Because somewhere out there, there are people who are learning. People who are slowing starting to understand. People who are curious and reach out to learn more.
And also… people who might help others in situations where they are beyond stressed out and need help. People who might be more at risk to do something like hurt their children or worse. In NO WAY SHAPE OR FORM am I saying it’s okay to hurt our kids… BUT… I know personally what it’s like to have no help… to have no one when days get rough… to be depressed… and the days that I go to the store and my kids are upset and people look at me like I’m the worst person alive… having that ONE PERSON who sees me, smiles or asks if there is anything they can do BECAUSE they understand… those days aren’t as bad. And I’d like to think that in a very small way, I’m contributing to that.
Besides. I don’t want ignorant people looking down on me or my kids. So whether my memes/pictures/posts either help those who feel completely alone and need that little extra support, or make light of a possibly frustrating situation… or help others understand a little bit… I’m going to do it. And as a HFA with Autistic kids… I get to call myself whatever I want. And Autism Parent… or Autism Mom is my choice.
So…. yeah.
#Soapbox lol

Aaaaaaaaaaaaaaaanyway…. hope you’re having a good day. 😛 🙂

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Regression and Progress

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Regression.

It’s always a possibility.

I was afraid that with the move… then finding out Ty had to go to a different school. Their routine being messed up. Different bus drivers, AND spring break on top of all of it?

And I was right to be worried…

So far:

The only thing I’ve REALLY noticed about Justin is that he stopped using his button. So I have to ask him if he needs to potty. We’ve had a few accidents and he’s starting to hold it again making himself constipated.

Tyler has become more aggressive. He started hitting again. (He does this because he can’t articulate why he’s upset… he’s not really trying to hurt me… he’s trying to get me to understand. How do I know? I used to do the same thing – or something similar… I could talk, but I couldn’t always convey what I was trying to say and it would eventually get too frustrating and I’d just punch a wall). He’s hurting himself more. He’s started going potty on the floor again… and he’s not eating as much as he was prior to the move.

Jaxson doesn’t really seem to be getting better with the yogurt and soy milk… but we were supposed to do it for a month, so we’re going to keep doing it and pray it works. :/

However… along with some regression that has made life a bit harder. Especially when I feel like I got hit by a truck. Twice. There have been some new things that still show progress!

Justin ate french fries willingly for the first time in a YEAR the other day!! 😀 😀 When we moved a year ago from PA to TX (2,000 miles)… the only thing we could find on the road that he would eat besides cereal, were french fries. So, four days of fries… and apparently it took a year to want them ever again! lol

Tyler is continuing to mimic and script on a daily basis… and although he still has no interest in being potty trained, he is at least taking off his diapers and putting them in the trash (sometimes)… and has now started to try to put his shorts on after he throws them away. Sometimes he remembers he needs a diaper first… sometimes he doesn’t. 😛

Jaxson has mastered crawling and standing up. He’s getting really good at walking with furniture and because he has, he started babbling again. 😀 Mamamamama, Nanananana… no Dadadada yet. Which Daddy is trying to rectify! 🙂

So, although we might go a little batty this Spring Break… and we have a lot more work to do to regain those skills that have regressed, we’re going to be celebrating the progress being made. 🙂